I'm back?

So it's been a long while since I posted anything. I actually wrote a few times but didn't post. For whatever reason I feel like I don't have much to say until I'm experiencing symptoms and then the desire to write come up again.

So many emotions with this flare up. 2 kids one only 9.5 months old makes this so much harder than 2 years ago. I also feel like the ccsvi (and everyone's help funding it makes this episode seem like a failure?). MS symptoms always begin with a ton of emotional stuff. Fear of the unknown (well fear of everything really) can leave me pretty incapacitated.

Symptoms
Balance, bladder issues, pain, fatigue, lack of muscle control, dragging leg, no hand finger dexterity.
But no cog fog! Very rare!

More to follow soon?

Comments

Post a Comment

Popular posts from this blog

Here we go...

So today is a getting ready day. I'm not sure how it happened but everything seems to have come together. We have rented a minivan so we should have ample room. I have delegated in car entertainment to Devin- I'm sure it will include more electronic stuff that I hope to use but that's okay. I still have to pack and double check all our stuff but even that seems fairly straight forward as its only a few days and we can buy items if we've forgotten them. I'm getting a little nervous now. Mostly it's manifesting as nervousness about getting the van, hitting traffic, and being stuck at the boarder. I'm fairly certain the moment those event pass it will all turn into nerves about the surgery. I know the risks are low but I do worry about eventualities if something were to happen to me. Scary thought. Mostly my poor mom, then Aidan, then Dev. Poor guy not that he deserves last place in that race but I really don't know how my mom would handle it if I died. L
Read more

One day at a time

Image
Thinking aloud. I've read two articles recently talking about setting realistic expectations for moms. The basic idea is that blogs and pinterest and other online sources set up unrealistic ideals for moms and especially stay at home moms. I found this kind of saddening to hear. Don't get me wrong I idealize others more than I should but I'm usually about to ground myself and I know that no one is perfect no matter how they portray themselves to others. My experience has actually been that those who put the most effort into looking like they have their shit together tend to be the most messed up - not always but sometimes. I have gain so much insight, support and inspiration from Facebook, pinterest and blogs that I'm saddens to realize that I've been lucky and selective about what I read. I've finally been using some of the ideas I've seen on pinterest and other blogs and I've found a lot of freedom in having so many great activity ideas to choose from
Read more

Happily home!

2 days post surgery and I'm starting to feel better. I'm home and that feels excellent. Sadly, even though I cleaned what I could before I left, the house was no where near clean enough for me when I got back. Ugh so I started cleaning immediately (yeah that's the kind of person I am sorry lol). But the good news is that cleaning didn't burn me out the way it did before I left!! yahoo!! Yep I just said yahoo about cleaning- deal with it lol. I didn't do nearly our whole apartment or anything even close (I'm aware I'm still recovering from surgery lol) but I did get my kitchen look good and almost as detailed a clean as I would like. I just need to pull out my steamer to really get the little stuff but it's going to be a process for sure. One room a day should get me to where I want to be soon enough. As you can likely tell I'm also in significantly better spirits than I have been in recent weeks! So nice to feel more like myself for a change. It
Read more